Many NET patients are concerned with the possibility of suffering from a carcinoid crisis during surgery as a result of receiving an anesthetic. Carcinoid crisis can be catastrophic if the medical staff are not prepared for such an event. Preparation requires the availability of sandostatin injections to prevent or combat carcinoid crisis if it should occur. Some Irish patients have experienced serious such crises during surgery. Other jurisdictions abroad have recognised this need and implemented ‘special protocols’ accordingly project planning software. NET Patient Network has written to Dr Susan O’Reilly of the NCCP asking her to investigate if a special protocol for NET patients is required in Ireland.
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- Carcinoid Syndrome & Carcinoid CrisisThe Centre of excellence at St. Vincent’s Hospital have provided us information on prevention and Management of Carcinoid Syndrome & Carcinoid Crisis. Up until now, we … Read more
- NET Patient Day 2023NET Patient Day 2023 has been decided, it will be Saturday 18th of November, beginning at 9 AM. This year we are going back to Cork … Read more
- The NET Patient Network Is Now A CharityFor many years patients & family members have asked the NET Patient Network if they can support us. We are a voluntary organisation, so it took … Read more
