Many NET patients are concerned with the possibility of suffering from a carcinoid crisis during surgery as a result of receiving an anesthetic. Carcinoid crisis can be catastrophic if the medical staff are not prepared for such an event. Preparation requires the availability of sandostatin injections to prevent or combat carcinoid crisis if it should occur. Some Irish patients have experienced serious such crises during surgery. Other jurisdictions abroad have recognised this need and implemented ‘special protocols’ accordingly project planning software. NET Patient Network has written to Dr Susan O’Reilly of the NCCP asking her to investigate if a special protocol for NET patients is required in Ireland.
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- A patient’s story about the help that Tommie Gorman gave her when she was newly diagnosed.A patient called Aimee Mc Clenahan from Sligo, did a outstanding radio interview about the help that Tommie gave her when she was newly diagnosed. Listen … Read more
- Tommie Gorman, R.I.P.We are all saddened by the sudden death of our Founder and President, Tommie Gorman. The idea of a patient support and advocacy group for Irish … Read more
- Volunteers for NET Patient Day 2024Volunteers were introduced for the first time at our Patient Day in Cork last November last year. We would like to thank them for supporting attendees … Read more
