Irish Support and Advocacy Group
for Neuroendocrine Cancer patients
and their families
Are You Newly Diagnosed?
You are not alone!
As an Irish Patient Group, we have years of experience that will help you
understand Neuroendocrine Tumours (NETs) and what is available to you in Ireland.
What we do
Patient day events
Meet the active
and close community annually
Real stories and advice
You are not alone.
Learn about other patient’s experiences
Knowledge database
Browse studies, data, informational
videos and get the latest NET news.
Global Patient Information Pack
Visit our link and download free factsheets on neuroendocrine tumors
in 10 languаges.
NETs are often called the ‘quiet cancers’
Awareness and knowledge are the key to give voice to patients
The latest news
This is the right place to get support by welcoming professionals, experts and patients.
- NET Patient Day – November 16th, 2024 at the Clayton Hotel, Ballybrit, GalwayAgenda09.00 – 09.05 Welcome (Mark McDonnell, NPN Chair)09.05 – 09.15 Opening Address (Dr Marcia Bell, Endocrinologist, GUH)09.15 – 09.30 The State of NET treatments in Ireland … Read more
- A patient’s story about the help that Tommie Gorman gave her when she was newly diagnosed.A patient called Aimee Mc Clenahan from Sligo, did a outstanding radio interview about the help that Tommie gave her when she was newly diagnosed. Listen … Read more
- Tommie Gorman, R.I.P.We are all saddened by the sudden death of our Founder and President, Tommie Gorman. The idea of a patient support and advocacy group for Irish … Read more