We have very clear advice for newly-diagnosed NETS patients and their families in Ireland.
No matter what you have been told by your medical team, if you have been diagnosed with a Neuro-Endocrine Tumour, we urge you to get in contact with a NET Specialist.
The National Treatment Centre at Saint Vincent’s Hospital, Dublin, has a dedicated team of experts, led by the National Lead, Professor Dermot O’ Toole.
The team at Saint Vincent’s has excellent working relations with satellite hospitals in other regional centres, with NET Specialists, in places including Cork and Galway, where many of our members receive first-class care.
All the members of our organisation are either NETS patients or their family members. We cannot walk in your shoes but we are on the same journey.
You have only one life. You are the one dealing with a NETS condition. You deserve the best. Our advice is make sure you are referred to the national centre for people like us and, in consultation with you, let the team at Saint Vincent’s plan the best treatment paths for you.
When you are diagnosed with a NETS condition and as you are adjusting to deal with the challenge, confidence and energy-levels are sometimes undermined. But you are not alone and our organisation is glad of the opportunity to help and support you.
NET Patient Network has excellent relations with clinicians, the National Cancer Control Programme, the HSE and pharmaceutical companies linked to the treatment of our disease. Our organisation believes Saint Vincent’s, along with NET specialists in linked hospitals, has a crucial role in caring for people like us.
Your first stop is to contact your GP or consultant and request that they seek a referral to the NETs Clinic in St Vincents (they should contact Ms Lisa Cullen – Clinical Nurse Specialist in Neuroendocrine Tumours, SVUH).
If you are unsure of what to do, why not join our Facebook, where we have members from all over Ireland, who may be able to help you. You can join by clicking here.
