neuroendocrinecancer-admin Video recordings of Saturday’s NET Patient Day 2024 event have been uploaded to our YouTube channel www.youtube.com/netpatientnetwork/ Photos have been uploaded to our Flickr photo stream and created a new photo album called “NET Patient Day 2024” https://www.flickr.com/photos/netpatient/albums/72177720322013464/
The annual ENETS/INCA webinar for patients is happening on Tuesday next week (Nov 12th) at 5pm Irish time. It always has good information and insights for patients. The NET Patient Network Chairperson, Mark McDonnell, will be a panellist for the final two sessions (New Treatment / Genomics). https://www.enets.org/upcoming-webinar-single-page/webinar37.html
Agenda09.00 – 09.05 Welcome (Mark McDonnell, NPN Chair)09.05 – 09.15 Opening Address (Dr Marcia Bell, Endocrinologist, GUH)09.15 – 09.30 The State of NET treatments in Ireland (Dr Greg Leonard, Oncologist, GUH)09.30 – 09.45 Typical Patient Journey (Dr Mark Doherty, Oncologist, SVUH)09.45 – 10.00 Remembering Tommie Gorman – founder of NPN and pioneer for NETs in … Read more
A patient called Aimee Mc Clenahan from Sligo, did a outstanding radio interview about the help that Tommie gave her when she was newly diagnosed. Listen to it here. https://www.rte.ie/radio/radio1/clips/22410979/
We are all saddened by the sudden death of our Founder and President, Tommie Gorman. The idea of a patient support and advocacy group for Irish neuroendocrine patients came from Tommie. He was diagnosed with the disease in 1994 while living in Brussels. He travelled to Uppsala in Sweden and received excellent care which is … Read more
