A patient called Aimee Mc Clenahan from Sligo, did a outstanding radio interview about the help that Tommie gave her when she was newly diagnosed. Listen to it here. https://www.rte.ie/radio/radio1/clips/22410979/
We are all saddened by the sudden death of our Founder and President, Tommie Gorman. The idea of a patient support and advocacy group for Irish neuroendocrine patients came from Tommie. He was diagnosed with the disease in 1994 while living in Brussels. He travelled to Uppsala in Sweden and received excellent care which is … Read more
Volunteers were introduced for the first time at our Patient Day in Cork last November last year. We would like to thank them for supporting attendees by helping patients with general directions and information, managing the microphone, etc. We need volunteers to help out in November this year if you can help please send an … Read more
NET Patient Day 2024 is Saturday November 16, in Galway. The meeting will be held in the Clayton Hotel on the east side of Galway city, providing easy access for people travelling from the north, south and east of the country.We hope to see you at the Clayton to enjoy each other’s company on the … Read more
The Centre of excellence at St. Vincent’s Hospital have provided us information on prevention and Management of Carcinoid Syndrome & Carcinoid Crisis. Up until now, we had management information, but many patients with Carcinoid Syndrome were having trouble getting medical professionals to take them seriously, when they needed to go for a medical procedure. To … Read more
NET Patient Day 2023 has been decided, it will be Saturday 18th of November, beginning at 9 AM. This year we are going back to Cork City for our NET Patient Day, to Ballincollig, on the western edge of the city. There will also be an informal get-together on Friday night, November 17th and because … Read more
For many years patients & family members have asked the NET Patient Network if they can support us. We are a voluntary organisation, so it took some time, but it is done, The NET Patient Network is now a Charity. The details are, NET Patient Network Ireland, Company Limited By Guarantee (CLG), company number, 627432, … Read more
Thank you to Mark McDonnell for spending the weekend editing them. There are two recordings,NET Patient Day 2022 – Part 1 – PresentationsNET Patient Day 2022 – Part 2 – Panel Q&A Click on the link below to go to the YouTube channel and click on the “Playlists” Tab, you will see “Patient Day 2022” … Read more
NET Patient Day 2022 sees the unavailing of the New NET Patient Network Logo.
The 2022 edition of the ENETS-INCA NET Cancer Day Educational Webinar will take place at 12:00 (11am Irish time) – (13:15 pm Irish time) on the 10th of November. Check here for the webinar agenda and further details:https://incalliance.org/enets-inca-net-cancer-day-webinar/ Mark McDonnell, the NET Patient Network Chairperson & INCA President will be co-chairing it on the day.
