Today November 10th is World NET cancer day. They are more people been diagnosed with Neuroendocrine Tumour Cancer every year.Unfortunately they are a lot of people who have been misdiagnosed with other illnesses for many years before they finally get the correct diagnoses.We need to spread the word about Neuroendocrine Tumour Cancer, so people can … Read more
National NET Patient Day is a Virtual EventNovember 7th, 2020 Information Day for Irish NET PatientsBecause this is a virtual even, we have written instructions that hopefully will make it easy for people to attend.All the information is on The NET Patient Network website and if you go to the bottom of the article there … Read more
For anyone who is interested in sending their patient diagnosis story to INCA for use in this years NET Cancer Day campaign, please use this link to download the form and to upload your selfie:https://incalliance.org/net-cancer-day-2020/ It would be great if we can have a few people do this. Please let me know if you do … Read more
NET Patients Network has received this information from Dr Dermot O’ Toole. All out-patient appointments in the NET Clinic will be held by phone from this week onwards due to the Corona virus.Patients should still attend the hospital for any scans unless they are directed otherwise.The MDT will continue as normal for the moment. Please … Read more
It includes Photos of the NET Patient Day, that have been uploaded to Flickr and the Slide presentations fromRachel Crowley, Gordana Kozlovacki, Kim Winter, Caroline Miller, Deirdre Burke and Donal O’Shea can be viewed. Here is a link to the Newsletterhttp://bit.ly/2OuyLNk
The National Centre for Pharmacoeconomics (NCPE) in Ireland are undertaking an assessment of Lutathera for approval in Ireland which is the first step to getting PRRT (Peptide receptor radionuclide therapy) here in Ireland. [more information on PRRT below] This is very important for Irish NET Patients, as having PRRT available in Ireland would mean Patients … Read more
November 9th 2019 (Saturday) is now confirmed for this years NET Patient Day. The event will be held in The Maldron Hotel in Tallaght where we held our 2016 event. The format will be the same as in previous years. We will have a social gathering on Friday evening. The event will start on Saturday … Read more
NET Patient Network launched the first part of it’s major information initiative. Three new videos featuring experts in Nets care and patients with first-hand experience of living with the condition have now been uploaded to our YouTube Channel. The First video tells the story of the National Centre of Excellence at Saint Vincent’s University Hospital, … Read more
Saturday Nov 3rd, 2018, Devere Hall, University College, Cork The New NET Booklets from IPSEN are available to download in PDF format. We would like to thank IPSEN for producing such valuable information for Irish NET Patients.
Saturday Nov 3rd, 2018, Devere Hall, University College, Cork The annual NET Patient Day 2018 will be held on Saturday November 3rd in Devere Hall, University College, Cork. More information coming soon.
