News 
The National Centre for Pharmacoeconomics (NCPE) in Ireland are undertaking an assessment of Lutathera for approval in Ireland which is the first step to getting PRRT (Peptide receptor radionuclide therapy) here in Ireland. [more information on PRRT below] This is very important for Irish NET Patients, as having PRRT available in Ireland would mean Patients … Read more
NET Patient Network launched the first part of it’s major information initiative. Three new videos featuring experts in Nets care and patients with first-hand experience of living with the condition have now been uploaded to our YouTube Channel. The First video tells the story of the National Centre of Excellence at Saint Vincent’s University Hospital, … Read more
Saturday Nov 3rd, 2018, Devere Hall, University College, Cork The New NET Booklets from IPSEN are available to download in PDF format. We would like to thank IPSEN for producing such valuable information for Irish NET Patients.
Saturday Nov 3rd, 2018, Devere Hall, University College, Cork The annual NET Patient Day 2018 will be held on Saturday November 3rd in Devere Hall, University College, Cork. More information coming soon.
St Vincents University Hospital in Dublin was recognised and awarded a Centre of Excellence certificate for NETs as the 39th ENETS Centre of Excellence at the ENETS Conference in Barcelona on Friday March 10th. The NETs clinic in St Vincents was audited last November after our patient day. The review panel from ENETS was satisfied … Read more
Photos from the patient day the 2016 NET Patient Day can now be viewed on our Flickr accounthttps://flic.kr/s/aHskP6Ee5V Photos from our previous patient days can also be viewed on that Flickr account. The videos from the talks on the day are on our YouTube channel.http://www.YouTube.com/NETPatientNetwork
Some good News for the NET Patient Network, we are now members of the International Neuroendocrine Cancer Alliance
NET Patient Day 2015, Sat Nov 14th, 2015, Cork University Hospital The annual NET Patient Day 2015 will be held on Saturday November 14th in Cork University Hospital, Wilton, Cork (click here for location). https://www.google.ie/maps/place/Cork+University+Hospital/@51.882886,-8.510574,15z/data=!4m2!3m1!1s0x0:0x7ed8176dea5eafa5 The event is free and all Neuroendocrine Tumour and Carcinoid patients and their family and friends are welcome to attend. Parking will … Read more
St Vincent’s NET Patients Only We have managed to receive special permission from Phlebotomy Dept in SVUH to allow NET patients to prebook an appointment slot to have their bloods taken look at more info. This will be especially useful for patients travelling long distances to SVUH to allow them to better coordinate having scans along with giving … Read more
The videos from our patient day are finally available! Sorry for taking so long to get these done but please check them out (click here). There are still a few more to be completed but hopefully these will be done very soon. You can view all of the videos on our YouTube channel by clicking here. Photos … Read more
