The Centre of excellence at St. Vincent’s Hospital have provided us information on prevention and Management of Carcinoid Syndrome & Carcinoid Crisis. Up until now, we had management information, but many patients with Carcinoid Syndrome were having trouble getting medical professionals to take them seriously, when they needed to go for a medical procedure. To … Read more
NET Patient Day 2023 has been decided, it will be Saturday 18th of November, beginning at 9 AM. This year we are going back to Cork City for our NET Patient Day, to Ballincollig, on the western edge of the city. There will also be an informal get-together on Friday night, November 17th and because … Read more
For many years patients & family members have asked the NET Patient Network if they can support us. We are a voluntary organisation, so it took some time, but it is done, The NET Patient Network is now a Charity. The details are, NET Patient Network Ireland, Company Limited By Guarantee (CLG), company number, 627432, … Read more
Thank you to Mark McDonnell for spending the weekend editing them. There are two recordings,NET Patient Day 2022 – Part 1 – PresentationsNET Patient Day 2022 – Part 2 – Panel Q&A Click on the link below to go to the YouTube channel and click on the “Playlists” Tab, you will see “Patient Day 2022” … Read more
NET Patient Day 2022 sees the unavailing of the New NET Patient Network Logo.
The 2022 edition of the ENETS-INCA NET Cancer Day Educational Webinar will take place at 12:00 (11am Irish time) – (13:15 pm Irish time) on the 10th of November. Check here for the webinar agenda and further details:https://incalliance.org/enets-inca-net-cancer-day-webinar/ Mark McDonnell, the NET Patient Network Chairperson & INCA President will be co-chairing it on the day.
OUR PATIENT DAY EVENTS ARE HAPPENING!!!November 12th 2022 Following two tough years we are now ready to meet again face to face- we hope to see you in the Plaza Hotel in Tallaght both to enjoy each other’s company on Friday evening the 11th of November 2022 at the NET dinner, and then be ready … Read more
Same as last year, it’s a virtual event again this yearDate set for Nov 13th, 10 Am to 1 PM Increased time for Q&A – talks for 1 hour followed by 2 hours for Q&A This is an information day for Irish NET patients. For safety reasons we have decided to again hold this year’s … Read more
A very special congratulations to Mark McDonnell, Chairman of NET Patient Network, on been formally voted as President Elect of INCA.International Neuroendocrine Cancer Alliance https://incalliance.org/The position begins immediately as a one year post and then he will take over the President position for a two year term. This is the first time that the parent … Read more