Many NET patients are concerned with the possibility of suffering from a carcinoid crisis during surgery as a result of receiving an anesthetic. Carcinoid crisis can be catastrophic if the medical staff are not prepared for such an event. Preparation requires the availability of sandostatin injections to prevent or combat carcinoid crisis if it should occur. Some Irish patients have experienced serious such crises during surgery. Other jurisdictions abroad have recognised this need and implemented ‘special protocols’ accordingly project planning software. NET Patient Network has written to Dr Susan O’Reilly of the NCCP asking her to investigate if a special protocol for NET patients is required in Ireland.
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- NET Patient Day 2024 Video & PhotosVideo recordings of Saturday’s NET Patient Day 2024 event have been uploaded to our YouTube channel www.youtube.com/netpatientnetwork/ Photos have been uploaded to our Flickr photo stream … Read more
- Annual ENETS/INCA Webinar For PatientsThe annual ENETS/INCA webinar for patients is happening on Tuesday next week (Nov 12th) at 5pm Irish time. It always has good information and insights for … Read more
- NET Patient Day – November 16th, 2024 at the Clayton Hotel, Ballybrit, GalwayAgenda09.00 – 09.05 Welcome (Mark McDonnell, NPN Chair)09.05 – 09.15 Opening Address (Dr Marcia Bell, Endocrinologist, GUH)09.15 – 09.30 The State of NET treatments in Ireland … Read more