News

NET Patient Network officially launched its website at a joint event with the NCCP in St. Vincent’s Hospital on June 6th. The NCCP announced the appoinment of Prof. Dermot O’Toole as National Clinical Lead of the Irish Neuroendocrine Tumour Group. The event was videotaped and will be made available online shortly. This was a great … Read more

A new professionally designed website has been launched by NET Patient Network to provide more medical information, particularly with an Irish focus.  The new website allows us to better inform NET patients of news and events, to provide a smoother registration facility and to establish an active and helpful community of Irish NET patients.

NET Patient Network has written to Dr John Devlin, Deputy CMO at the Department of Health, with a view to having Neuroendocrine Tumour disease included in the HSE Longterm Illness Scheme.  We will continue with our efforts to have NETs included in this scheme.

In the UK, a wallet sized card was produced by the NET Patient Foundation for NET patients to carry on their person.  The purpose of this card is to identify the holder to medical personnel as a NET patient who might suffer a carcinoid crisis in the event of having to receive emergency surgery or … Read more

A new NET nurse specialist, Ms Lisa Cullen, has been appointed and is now in place in St Vincent’s Hospital in Dublin best project management software.  This appointment is part of the strategy to create a NET Centre of Excellence.  The new nurse specialist is shared between NETs and Liver Cancer support and operates every Thursday … Read more

Many NET patients are concerned with the possibility of suffering from a carcinoid crisis during surgery as a result of receiving an anesthetic.  Carcinoid crisis can be catastrophic if the medical staff are not prepared for such an event.  Preparation requires the availability of sandostatin injections to prevent or combat carcinoid crisis if it should … Read more

The NCCP (National Cancer Care Program) has selected Neuroendocrine Tumours as one of the rare cancers that it wishes to examine as part of the restructuring of cancer care in Ireland. At a conference in Trinity College in November, the NCCP, the HSE and medical professionals in Ireland were joined by recognised international specialists in … Read more

A special National NET Patients Day was held in Trinity College on November 10th to coincide with the Worldwide NET Cancer Awareness Day.  Dr Susan O’Reilly of the National Cancer Care Programme (NCCP) opened the patient event and gave an overview of the NCCP’s plan for NETs treatments in Ireland.  Irish and International experts in … Read more

The inaugural meeting of the Irish Neuroendocrine Neoplasm Group was held at Trinity College Dublin.  Irish and international experts in carcinoid/NETs gathered to discuss advances in the field, diagnostic and therapeutic practices currently available in Ireland, as well as areas where Ireland is falling behind, especially in specialized nuclear medicine diagnostic and therapy tools.  Commenting … Read more