First ever global survey specifically on Neuroendocrine Tumour (NET) Cancer INCA (International Neuroendocrine Cancer Alliance) is trying to increase awareness and education about NETs worldwide by holding the first ever global survey of NET cancer patients. We at NET Patient Network hope that you can spare 25 minutes to take the survey and that as many Irish patients as possible will … Read more
The Question & Answer session videos from the National NET Patient Day in Kilkenny last November have been released and can be viewed on the NET Patient Day page <a href=”http://netpatientnetwork over at this website.ie/index.php/annual-net-patient-day/” title=”Annual NET Patient Day”>here. The Q&A videos are listed in the order as they were asked. We have removed the identify … Read more
This is a FREE EVENT and ALL are welcome The timetable for the National NET Patient Day on Saturday November 9th in the Springhill Court Hotel, Kilkenny: 9.00am Tea/Coffee and Registration 10.00am Welcome address 10.15am Bill Claxton, Founder of Singapore NET Patient Group 10.45am Per Hellman, NET’s Surgeon, Uppsala, Sweden 11.15am Q&A Session with presenters … Read more
The National Patient Day 2013 has been confirmed for Saturday November 9th in the Springhill Court Hotel in Kilkenny. The day will start with registration and tea/coffee between 9 and 10am. In the morning session we will have presentations from Dr Per Hellman, a NET surgeon, from Uppsala Neuroendocrine Centre of Excellence in Sweden and an … Read more
Professor Dermot O’Toole began his new NET clinic in St Vincent’s Hospitel on Friday September 20th. The first patient seen was Mr Tom O’Donohue from Tippperary seen here with (l-r) Mr Justin Geoghegan, Prof. Dermot O’Toole, Mr Tom Donohue, Prof. Donal O’Shea and Ms Lisa Cullen.
Professor Dermot O’Toole was appointed as National Clinical Lead for Neuroendocrine Tumours by the NCCP. This is an important step on the road to establishing a Centre of Excellence for NETs treatments in Ireland. The video below is a record of the event at which this appointment was announced on June 6th, 2013 in St … Read more
The NCCP have appointed Prof. Dermot O’Toole as National Clinical Lead of the Irish Neuroendocrine Tumour Group as part of their national strategy for NETs treatment in Ireland. Professor O’Toole will lead a project to develop a National Programme for Neuroendocrine Tumours involving the designated cancer centres in Dublin, Cork and Galway. This is a … Read more
NET Patient Network officially launched its website at a joint event with the NCCP in St. Vincent’s Hospital on June 6th. The NCCP announced the appoinment of Prof. Dermot O’Toole as National Clinical Lead of the Irish Neuroendocrine Tumour Group. The event was videotaped and will be made available online shortly. This was a great … Read more
A new professionally designed website has been launched by NET Patient Network to provide more medical information, particularly with an Irish focus. The new website allows us to better inform NET patients of news and events, to provide a smoother registration facility and to establish an active and helpful community of Irish NET patients.
NET Patient Network has written to Dr John Devlin, Deputy CMO at the Department of Health, with a view to having Neuroendocrine Tumour disease included in the HSE Longterm Illness Scheme. We will continue with our efforts to have NETs included in this scheme.
