Video recordings of Saturday’s NET Patient Day 2024 event have been uploaded to our YouTube channel www.youtube.com/netpatientnetwork/ Photos have been uploaded to our Flickr photo stream and created a new photo album called “NET Patient Day 2024” https://www.flickr.com/photos/netpatient/albums/72177720322013464/
The annual ENETS/INCA webinar for patients is happening on Tuesday next week (Nov 12th) at 5pm Irish time. It always has good information and insights for patients. The NET Patient Network Chairperson, Mark McDonnell, will be a panellist for the final two sessions (New Treatment / Genomics). https://www.enets.org/upcoming-webinar-single-page/webinar37.html
Agenda09.00 – 09.05 Welcome (Mark McDonnell, NPN Chair)09.05 – 09.15 Opening Address (Dr Marcia Bell, Endocrinologist, GUH)09.15 – 09.30 The State of NET treatments in Ireland (Dr Greg Leonard, Oncologist, GUH)09.30 – 09.45 Typical Patient Journey (Dr Mark Doherty, Oncologist, SVUH)09.45 – 10.00 Remembering Tommie Gorman – founder of NPN and pioneer for NETs in … Read more
A patient called Aimee Mc Clenahan from Sligo, did a outstanding radio interview about the help that Tommie gave her when she was newly diagnosed. Listen to it here. https://www.rte.ie/radio/radio1/clips/22410979/
We are all saddened by the sudden death of our Founder and President, Tommie Gorman. The idea of a patient support and advocacy group for Irish neuroendocrine patients came from Tommie. He was diagnosed with the disease in 1994 while living in Brussels. He travelled to Uppsala in Sweden and received excellent care which is … Read more
Volunteers were introduced for the first time at our Patient Day in Cork last November last year. We would like to thank them for supporting attendees by helping patients with general directions and information, managing the microphone, etc. We need volunteers to help out in November this year if you can help please send an … Read more
NET Patient Day 2024 is Saturday November 16, in Galway. The meeting will be held in the Clayton Hotel on the east side of Galway city, providing easy access for people travelling from the north, south and east of the country.We hope to see you at the Clayton to enjoy each other’s company on the … Read more
The Centre of excellence at St. Vincent’s Hospital have provided us information on prevention and Management of Carcinoid Syndrome & Carcinoid Crisis. Up until now, we had management information, but many patients with Carcinoid Syndrome were having trouble getting medical professionals to take them seriously, when they needed to go for a medical procedure. To … Read more
NET Patient Day 2023 has been decided, it will be Saturday 18th of November, beginning at 9 AM. This year we are going back to Cork City for our NET Patient Day, to Ballincollig, on the western edge of the city. There will also be an informal get-together on Friday night, November 17th and because … Read more
For many years patients & family members have asked the NET Patient Network if they can support us. We are a voluntary organisation, so it took some time, but it is done, The NET Patient Network is now a Charity. The details are, NET Patient Network Ireland, Company Limited By Guarantee (CLG), company number, 627432, … Read more
