News and Events

Video recordings of Saturday’s NET Patient Day 2024 event have been uploaded to our YouTube channel www.youtube.com/netpatientnetwork/ Photos have been uploaded to our … Read more

The annual ENETS/INCA webinar for patients is happening on Tuesday next week (Nov 12th) at 5pm Irish time. It always has good information … Read more

Agenda09.00 – 09.05 Welcome (Mark McDonnell, NPN Chair)09.05 – 09.15 Opening Address (Dr Marcia Bell, Endocrinologist, GUH)09.15 – 09.30 The State of NET … Read more

A patient called Aimee Mc Clenahan from Sligo, did a outstanding radio interview about the help that Tommie gave her when she was … Read more

We are all saddened by the sudden death of our Founder and President, Tommie Gorman. The idea of a patient support and advocacy … Read more

Volunteers were introduced for the first time at our Patient Day in Cork last November last year. We would like to thank them … Read more

NET Patient Day 2024 is Saturday November 16, in Galway. The meeting will be held in the Clayton Hotel on the east side … Read more

The Centre of excellence at St. Vincent’s Hospital have provided us information on prevention and Management of Carcinoid Syndrome & Carcinoid Crisis. Up … Read more

NET Patient Day 2023 has been decided, it will be Saturday 18th of November, beginning at 9 AM. This year we are going … Read more

For many years patients & family members have asked the NET Patient Network if they can support us. We are a voluntary organisation, … Read more

Thank you to Mark McDonnell for spending the weekend editing them. There are two recordings,NET Patient Day 2022 – Part 1 – PresentationsNET … Read more

NET Patient Day 2022 sees the unavailing of the New NET Patient Network Logo.

The 2022 edition of the ENETS-INCA NET Cancer Day Educational Webinar will take place at 12:00 (11am Irish time) – (13:15 pm Irish … Read more

OUR PATIENT DAY EVENTS ARE HAPPENING!!!November 12th 2022 Following two tough years we are now ready to meet again face to face- we … Read more

Same as last year, it’s a virtual event again this yearDate set for Nov 13th, 10 Am to 1 PM Increased time for … Read more

A very special congratulations to Mark McDonnell, Chairman of NET Patient Network, on been formally voted as President Elect of INCA.International Neuroendocrine Cancer … Read more

Today November 10th is World NET cancer day. They are more people been diagnosed with Neuroendocrine Tumour Cancer every year.Unfortunately they are a … Read more

National NET Patient Day is a Virtual EventNovember 7th, 2020 Information Day for Irish NET PatientsBecause this is a virtual even, we have … Read more

For anyone who is interested in sending their patient diagnosis story to INCA for use in this years NET Cancer Day campaign, please … Read more

NET Patients Network has received this information from Dr Dermot O’ Toole. All out-patient appointments in the NET Clinic will be held by … Read more

It includes Photos of the NET Patient Day, that have been uploaded to Flickr and the Slide presentations fromRachel Crowley, Gordana Kozlovacki, Kim … Read more

The National Centre for Pharmacoeconomics (NCPE) in Ireland are undertaking an assessment of Lutathera for approval in Ireland which is the first step … Read more

November 9th 2019 (Saturday) is now confirmed for this years NET Patient Day. The event will be held in The Maldron Hotel in … Read more

NET Patient Network launched the first part of it’s major information initiative. Three new videos featuring experts in Nets care and patients with … Read more

Saturday Nov 3rd, 2018, Devere Hall, University College, Cork The New NET Booklets from IPSEN are available to download in PDF format. We … Read more

Saturday Nov 3rd, 2018, Devere Hall, University College, Cork The annual NET Patient Day 2018 will be held on Saturday November 3rd in Devere Hall, University College, Cork. … Read more

St Vincents University Hospital in Dublin was recognised and awarded a Centre of Excellence certificate for NETs as the 39th ENETS Centre of … Read more

Photos from the patient day the 2016 NET Patient Day can now be viewed on our Flickr accounthttps://flic.kr/s/aHskP6Ee5V Photos from our previous patient days … Read more

Some good News for the NET Patient Network, we are now members of the International Neuroendocrine Cancer Alliance

NET Patient Day 2015, Sat Nov 14th, 2015, Cork University Hospital The annual NET Patient Day 2015 will be held on Saturday November 14th in … Read more

St Vincent’s NET Patients Only We have managed to receive special permission from Phlebotomy Dept in SVUH to allow NET patients to prebook an appointment … Read more

The videos from our patient day are finally available! Sorry for taking so long to get these done but please check them out (click … Read more

The videos from our patient day are finally available! Sorry for taking so long to get these done but please check them out (click … Read more

We are delighted to announce that the NET Patient Network is going Social. While there are many different types of Social Media to choose … Read more

The NET Patient Network Goes Social Saturday November 8th 2014 St Vincent’s University Hospital, Dublin The 2014 Annual NET Patient Day will be … Read more

First ever global survey specifically on Neuroendocrine Tumour (NET) Cancer INCA (International Neuroendocrine Cancer Alliance) is trying to increase awareness and education about … Read more

The Question & Answer session videos from the National NET Patient Day in Kilkenny last November have been released and can be viewed … Read more

This is a FREE EVENT and ALL are welcome The timetable for the National NET Patient Day on Saturday November 9th in the … Read more

The National Patient Day 2013 has been confirmed for Saturday November 9th in the Springhill Court Hotel in Kilkenny. The day will start with … Read more

Professor Dermot O’Toole began his new NET clinic in St Vincent’s Hospitel on Friday September 20th. The first patient seen was Mr Tom … Read more

Professor Dermot O’Toole was appointed as National Clinical Lead for Neuroendocrine Tumours by the NCCP. This is an important step on the road … Read more

The NCCP have appointed Prof. Dermot O’Toole as National Clinical Lead of the Irish Neuroendocrine Tumour Group as part of their national strategy … Read more

NET Patient Network officially launched its website at a joint event with the NCCP in St. Vincent’s Hospital on June 6th. The NCCP … Read more

A new professionally designed website has been launched by NET Patient Network to provide more medical information, particularly with an Irish focus.  The … Read more

NET Patient Network has written to Dr John Devlin, Deputy CMO at the Department of Health, with a view to having Neuroendocrine Tumour … Read more

In the UK, a wallet sized card was produced by the NET Patient Foundation for NET patients to carry on their person.  The … Read more

A new NET nurse specialist, Ms Lisa Cullen, has been appointed and is now in place in St Vincent’s Hospital in Dublin best project … Read more

Many NET patients are concerned with the possibility of suffering from a carcinoid crisis during surgery as a result of receiving an anesthetic.  … Read more

The NCCP (National Cancer Care Program) has selected Neuroendocrine Tumours as one of the rare cancers that it wishes to examine as part … Read more