NET Patients Network has received this information from Dr Dermot O’ Toole. All out-patient appointments in the NET Clinic will be held by phone from this week onwards due to the Corona virus.Patients should still attend the hospital for any scans unless they are directed otherwise.The MDT will continue as normal for the moment. Please … Read more
It includes Photos of the NET Patient Day, that have been uploaded to Flickr and the Slide presentations fromRachel Crowley, Gordana Kozlovacki, Kim Winter, Caroline Miller, Deirdre Burke and Donal O’Shea can be viewed. Here is a link to the Newsletterhttp://bit.ly/2OuyLNk
The National Centre for Pharmacoeconomics (NCPE) in Ireland are undertaking an assessment of Lutathera for approval in Ireland which is the first step to getting PRRT (Peptide receptor radionuclide therapy) here in Ireland. [more information on PRRT below] This is very important for Irish NET Patients, as having PRRT available in Ireland would mean Patients … Read more
November 9th 2019 (Saturday) is now confirmed for this years NET Patient Day. The event will be held in The Maldron Hotel in Tallaght where we held our 2016 event. The format will be the same as in previous years. We will have a social gathering on Friday evening. The event will start on Saturday … Read more
NET Patient Network launched the first part of it’s major information initiative. Three new videos featuring experts in Nets care and patients with first-hand experience of living with the condition have now been uploaded to our YouTube Channel. The First video tells the story of the National Centre of Excellence at Saint Vincent’s University Hospital, … Read more
Saturday Nov 3rd, 2018, Devere Hall, University College, Cork The New NET Booklets from IPSEN are available to download in PDF format. We would like to thank IPSEN for producing such valuable information for Irish NET Patients.
Saturday Nov 3rd, 2018, Devere Hall, University College, Cork The annual NET Patient Day 2018 will be held on Saturday November 3rd in Devere Hall, University College, Cork. More information coming soon.
St Vincents University Hospital in Dublin was recognised and awarded a Centre of Excellence certificate for NETs as the 39th ENETS Centre of Excellence at the ENETS Conference in Barcelona on Friday March 10th. The NETs clinic in St Vincents was audited last November after our patient day. The review panel from ENETS was satisfied … Read more
Photos from the patient day the 2016 NET Patient Day can now be viewed on our Flickr accounthttps://flic.kr/s/aHskP6Ee5V Photos from our previous patient days can also be viewed on that Flickr account. The videos from the talks on the day are on our YouTube channel.http://www.YouTube.com/NETPatientNetwork
Some good News for the NET Patient Network, we are now members of the International Neuroendocrine Cancer Alliance
